Author: Angie

Hello acromegaly friends and families,

We have lots to share with Ottawa Acromegaly Awareness and Support Network.

President Dianne Sauvé and myself (Heather Elder, VP) recently attended the 2019 International Acromegaly Conference, held March 20-22 in New Orleans.

This incredible event allowed us to meet over 200 individuals connected to the acromegaly community—patients from around the world, supportive family and friends, medical professionals, and pharmaceutical representatives.

The conference focus was patients and physicians working together for improved healthcare for acromegaly patients. Each session offered excellent insights and advice.

With so many ideas and conversations to share, we’d like to explore some key takeaways in a series of posts. First up: strategies for coping with acromegaly, from diagnosis to daily life.

Catherine Jonas, a licensed marriage and family therapist with a speciality in working with those who have (or whose loved one has) a chronic illness, spoke about “My Role in Coping with Acromegaly”.

Continue reading “Acromegaly Support Conference 2019: A Patient’s Learning Experience” →

Good Tuesday morning to everyone! We have great news to share. Yesterday marked the beginning of a new week but it also marked a new beginning for Acromegaly Ottawa Awareness & Support Network. We have received confirmation that we are the recipients of a grant from Pfizer Canada!

We can now move forward with fulfilling our mission to build awareness for acromegaly and provide support to patients. We are a young group but we will reach out to our community through educational activities and patient support initiatives that will echo what we want patients to know: You are not alone.

More information to come!

Dianne Cooke-Sauvé
President

It’s a cool day in Ottawa today but we have received warm news for our group! We heard today that we have been approved as a Not For Profit Corporation in Ontario. What this means for us is that now we can move forward with funding proposals that will help fund our budget and allow us to develop and implement awareness and patient support activities.

Our board members can now start work on these things but we want to hear from our members as well. Do you know of funding sources that may help us? Do you have ideas for patient support activities? This is YOUR group and your thoughts and ideas are vital, so feel free to share. Simply post your ideas in the comments, in the Facebook group or send us an email at acromegalyottawa@gmail.com.

I’ve also spoken with Matthew Luloff, my local representative at Ottawa City Hall, who has agreed to put our links on his social media pages. One more score for Acromegaly Awareness! He has also graciously agreed to attend the Light of Day Exhibit at Shenkman Art Centre in March 2020. We will keep on working to get the word out there, we have a voice and we are going to use it!

All the best,

Dianne

President